Sunday, May 24, 2015

Count It! Parkinson’s Priority Moves to House Floor
Exciting news for the Parkinson’s community! On May 21, 2015, the House Energy & Commerce Committee unanimously passed H.R. 6, the 21st Century Cures Act, which includes a key Parkinson’s priority, the Advancing Research for Neurological Diseases Act (H.R. 292/S. 849). The House is expected to bring the 21st Century Cures Act to a vote in June.

Before passing the bill, the committee held opening statements, where Parkinson’s was front and center. Representative Diana DeGette (D-CO), who is a leader on the 21st Century Cures Initiative, mentioned her connection to Parkinson’s disease and her support for the data collection priority, which is included in the bill as the “National Neurological Diseases Surveillance System.” Watch Rep. DeGette’s statement. 
The 21st Century Cures Act features other key provisions, including a $10 billion “Innovation Fund” at the National Institutes of Health, additional funding to support activities at the Food and Drug Administration (FDA), incorporation of patient experience data into the regulatory process at FDA, and exemption of FDA user fee programs from sequestration.
While we’ve taken an important step in the process, your continued advocacy is needed to ensure passage in the House. Please ask your Member to co-sponsor H.R. 292 today and support this priority by voting yes on the 21st Century Cures Act when it is considered on the House floor.



No comments:

Post a Comment